Tuesday, March 18, 2014

Pilomyxoid Astrocytoma

Today Dr.NeurOncologist called with the final pathology results.

Vince's tumor is a Grade II Pilomyxoid Astrocytoma.  Dr.NeurOncologist puts it at a 5% chance of recurrence. Pilomyxoid Astrocytomas are a relatively "new" discovery.  Most occur in other areas of the brain.  Dr.NeurOncologist said that because it was completely resected (doctor speak for removed), Vince has a lot better prognosis than other patients who have the same type of tumor in the usual areas since the tumor usually cannot be completely removed in these other brain areas.

It is an extremely unusual type of tumor for Vince's genetic disease, but Dr.NeurOncologist still thinks it is from it.  I found two academic peer reviewed papers online that said there were only two cases of this type of tumor in patients with Vince's genetic disease.  Ain't we special...

So we'll be followed by Dr.NeurOncologist... Vince will have scans every so often to make sure it doesn't come back...  It ain't over... Monitoring for recurrence will be a way of life for us...

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